11. What are some organizations that can help a family cope with a child's disorder?

One of the most well known organizations is the Progeria Research Foundation; they fund research for Progeria and they help fund chapters throughout the country. You can learn more about them at their website progeriaresearch.org. Progeria.be is also an organization that helps families with Progeria. It provides information about other families with this disease and assists you in finding more information about this. You can learn more about them at progeria.be/index_EN.php. There is also an association called Genetic Alliance, and they work in the area of genetics. They offer a one-on-one assistance to help individuals and families create support groups and help you with many things. You can find out more information about them at geneticalliance.org.